Overwhelmed
Without clear guidance, every decision feels heavy, and the constant uncertainty leaves you exhausted and emotionally drained.
Free e-book for hospice caregivers
You don't have to walk this path alone.
Read Collective Voices, real stories from family caregivers who've been where you are now — free, and yours to keep. Plus free videos, handouts, and a supportive community to help you feel prepared, confident, and less alone.
Collective Voices: A Free E-book for Hospice Caregivers
Read the stories of caregivers who've walked this path before you.
“Caregiving is the hardest thing I have ever done, but it is also the greatest thing I have ever done.”
You are not the first to feel this way
Do you feel….
Afraid
You want to do what's best for the person in your care, but without knowing what to expect, you fear making the wrong choice at a critical moment.
Alone
Hospice provides support, but there are long hours when you're the only one there — unsure if you're doing enough or if anyone truly understands.
We are here to give you the knowledge, confidence, and support you need — so you are empowered with everything you need as you face this journey.
Resources for Family Caregivers
Everything you need — knowing, doing, being
Built around the three things every caregiver needs: the knowledge to understand, the things you can do to bring comfort, and ways to cope and ask for help.
Videos
Short, supportive videos that help you understand what to expect — from recognizing pain to advocating for your loved one.
Explore Videos
Handouts
Practical, quick-reference guidance you can print, save, and come back to whenever you need it.
Explore Handouts
Community
A community of caregivers who've been where you are. Ask, share, and find your footing together.
Explore CommunityPlus new free videos, handouts, and podcasts as we release them.
Real voices, real care
Hope from those who've been there…
I've never been a caregiver before. You don't know it until you become one, but being a caregiver is really hard. There are so many hardships! Is what I'm feeling normal? Sometimes I just want to give up, but I have to keep going.
I had to navigate a lot of things including my grief, family issues and logistics. I didn't feel prepared. I wish I'd had more time, more resources, and more help. But I also know I could only do so much, and I got to say goodbye.
Some people are thrust into this very emotionally draining role of caregiving and often come from various difficult backgrounds. If I can provide others with ideas or solutions based on my experience, I think it could be highly beneficial for other caregivers.
Caregiving is the hardest thing I have ever done, but it is also the greatest thing I have ever done. I don't regret one minute of it. My sister moved in with me before she passed away. As hard as it was, we had the best year and a half together.
I am helping Dad have a good death. He had a good life and I want him to have a good death too.
I don't think of myself as a caregiver. I am a wife and a mother. And I guess this is what you do for the people you love. I don't have medical skills. I freak out when I see blood, so I had to learn a lot. I had to be brave.
Who we are
A team with expertise and knowledge of hospice care
The LIGHT team consists of individuals from across the United States with knowledge and expertise in the clinical practice of hospice and palliative medicine. Hospice administrators, physicians, nurses, social workers, and chaplains provide advice to LIGHT leadership on issues related to hospice clinical practice and policies.
Current and former hospice caregivers provide volunteer service, peer support, and guidance based on very personal experiences. This national expertise and first-hand experience give LIGHT solid scientific insight, professional credibility, and personal understanding.
- A caregiver advisory board of current and former hospice caregivers sets priorities and reviews every resource.
- A clinical advisory board of hospice physicians, nurses, social workers, and chaplains.
- A partnership between the Hospice Foundation for Outreach and Washington University Palliative Medicine.
- Always free for every family, wherever you are in the U.S.
Collective Voices · Free e-book
Get your free copy of Collective Voices
Read the stories of caregivers who've walked this path before you. Preparing hospice caregivers with knowledge, ability, & the power to act.
Collective Voices
A Free E-book for Hospice Caregivers
Podcasts Videos Handouts Community